RT Journal Article
T1 World Workshop on Oral Medicine VIII: Development of a core outcome set for oral lichen planus: the patient perspective
A1 Diniz Freitas, Márcio
A1 López Pintor, Rosa María
A1 Bissonnette, Caroline
A1 Dan, Hongxia
A1 Ramesh, Shilpa Shree Kuduva
A1 Valdez, J. Amadeo
A1 Brennan, Michael T.
A1 Burkhart, Nancy
A1 Farag, Arwa
A1 Greenberg, Martin S.
A1 Hong, Catherine
A1 Setterfield, Jane F.
A1 Woo, Sook-Bin
A1 Sollecito, Thomas P.
A1 Byrne, Harriet
A1 Robledo Sierra, Jairo
A1 Taylor, Jennifer
A1 Ní Ríordáin, Rícheal
AB Objective: This study aimed to explore the lived experience of patients with oral lichen planus (OLP) and investigate what treatment-related outcomes are the most important to them and should be included in a core outcome set (COS) for OLP.Study Design: A qualitative study involving focus group work with 10 participants was conducted. Interviews with each focus group were held twice: session 1 explored the lived experience of patients with OLP, and session 2 allowed patients to review a summary of the outcome domains used in the OLP literature to date. The discussions were recorded, transcribed verbatim, and analyzed using framework analysis.Results: In session 1, 4 themes and 8 sub-themes emerged from the data analysis. An additional outcome, ‘knowledge of family and friends,’ was suggested in session 2.Conclusions: We have gained valuable insight into the lived experience of patients with OLP via this qualitative study. To our knowledge, this study is the first to explore the patient perspective on what should be measured in clinical trials on OLP, highlighting an important additional suggested outcome. This additional outcome will be voted upon in a consensus process to determine a minimum COS for OLP
PB Elsevier
SN 2212-4403
YR 2023
FD 2023
LK http://hdl.handle.net/10347/32751
UL http://hdl.handle.net/10347/32751
LA eng
NO Oral Surgery, Oral Medicine, Oral Pathology and Oral Radiology. Volume 135, Issue 6, June 2023, Pages 781-791. https://doi.org/10.1016/j.oooo.2023.02.015
DS Minerva
RD 3 may 2026